Lived Experience Forum

[Jupiter]

Hello Forumites 🤩

We know the Forums are a valuable mental health resource for people living with complex mental health needs; however, we understand from member feedback that there are areas of the Forums that could be strengthened.  

We are currently preparing for a co-design project that aims to identify key areas for improvement in the SANE Forums, which may inform a refresh of areas such as the Forums’ design, scope, purpose, approach, guidelines, spaces, support and user experience.

What is co-design?

Co-design means working directly with the people who use a service in order to identify issues and make improvements. This project will directly lead to improvements in the SANE Forums, aligned with the needs and wishes of Forums members. We will start working alongside forum members later this year so watch this space!

How can I be involved?

The first step of the process will be an exploratory phase to understand current issues. We plan to work with Forum members and other key stakeholders in a variety of ways, such as through a community survey and focus groups.

We will let everyone know when we have further information and are ready to get started!

All the best,

Jupiter

[ArraDreaming]

@Jupiter
I don’t know why, but I’m having trouble understanding what this actually means, For some reason I keep reading it and I still cant comprehend it…

[florencefifty]

Essentially, it just means that they’re considering updating the site.

The people who are in charge of designing the forum are going to reach out in the coming weeks and see whether people have ideas for the sort of changes they want to see, and what new designs are popular and unpopular with members.

Not much information on what they’re thinking of changing or how, but they’re just saying “stay tuned”.

@ArraDreaming .

[ArraDreaming]

Who are you

[florencefifty]

@ArraDreaming . Oh, I’m just another member :).

[BlueBells]

@Jupiter 

Hi there.

Check out this site and see what you think of it.  I find it easier to navigate than SANE, but SANE has improved over the years.

https://www.fibromyalgiaforums.org

I also started a thread Format Suggestions, of which I am sure you are aware.

Please,  you and your team,  have a browse of the site, and comment on the thread I started also if you like. 

[BlueBells]

@Shaz51 @oceangirl @Faith-and-Hope @Zoe7 @Appleblossom @TAB @StuF @Meowmy @PeppyPatty @Jacques @plasmo @outlander @tyme @Silenus @Sadams50

G'day. I thought this was the easiest way to let you know this thread has arrived. 🙂

[Shaz51]

Hello and hugs @BlueBells , @Jupiter , @florencefifty , @ArraDreaming 🥰

[BlueBells]

Hi @Shaz51

Hugs to you too 🙂 Do you know if @Silenus is still on the site?

Have you had a chance to check that fibro site out yet? Wander around, get a 'feel' of it, and see what you think.

I'm just letting people know in case it gives anyone some suggestion ideas, now that SANE is asking again.

Take care, hugs oxoxox

[Jupiter]

Hey everyone @ArraDreaming @florencefifty @BlueBells @Shaz51 

@ArraDreaming  Basically we want to hear from forum members what they think is working well and where they think we could make improvements. Then we will work with members around how we can make these improvements happen. We will be sending out a survey and running small discussion groups for example to gather member’s views. We will share more info when we have it, hope that helps clarify 😊

Thanks @BlueBells for sharing that website, I will definitely take a look! We’re also keen to hear your thoughts on the forums once we begin gathering information from members.