21-05-2019 09:09 PM
21-05-2019 09:09 PM
By the way, getting creative is a great outlet. I think art helps us to vent positively, perhaps even without realising we are.
21-05-2019 09:14 PM
The question of networks is a moot point ...
I have tried 2 local carers groups. One even came with the carrot of a free morning tea and movie. SOmehow I could not bring myself to go and I just keep email contact now. I did not feel strong enough to break into new social ground. Other people also had a lot of need and I had already poujred out so much of my listening time, I knew my needs would not be met by groups.
Mostly I have social contact, if I keep my expressed needs few. This is the pattern of my early childhood too.
The forum has been good for me ... I have not had to leave the house and make specific appointments ... maybe its just the timing ... coincidence .. luck ...
Good night and thanks for the topic
21-05-2019 10:11 PM
I know the topic night is finished but I just wanted to say that this really opened up my mind to something I never thought of. I have been a parental sibling since I was 12. I also did what I could to keep my mum alive. As my siblings got older and we all left home I stayed with my nan for a while caring for her now I am a parent. My son has just started going through an asd assessment to work out if he has asperger's or high functioning autism. Drs are positive he has one of them. But I didn't think of myself as being a carer back then and I still don't now, I just think of myself as a parent of a child with disabilities.
21-05-2019 10:37 PM
Hearing you @BabyDragon. Referring to ourselves as carers I think is more about defining our role when we need support. In my situation, by saying that I am a carer for the other four members of the household gets me noticed when I say that things are really wonky at the moment and I need extensions for assignments, or I can’t make class.
I am not just a wife wife and parent. What we are dealing with is beyond that, as it is for you. Accessing financial support also means ticking a carer box on forms.
If you’re not comfortable with the carer title, you can say you’re a parent of a child with disabilities and leave it at that .... ots whatever you are comfortable with.
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